Tuesday, May 1, 2012

Alliance Update 2012 Vol. 2

Celebrate Celiac Awareness Month
Cupcakes and a Countdown
 1 in 133 Event logo
One year ago, the national news outlets from coast to coast were buzzing about gluten-free labeling. The efforts in Washington,DC, building the world's tallest gluten free cake, and the gluten free labeling summit, produced RESULTS. 
Congress and the FDA heard us and we ate cake!
This year, we invite everyone to make cupcakes - - one for every year they have been gluten-free. Take a picture and post it to the ACDA's Facebook page. Then, post it on your Facebook page or blog and link to the ACDA's page.  The more likes we receive the more voices will be heard from our virtual community.
People will vote by "liking" the photos, as well. Categories include: best presentation, most unique decorations and years of being gluten-free.  The winners will receive prizes of gluten-free products and coupons.  Among those gift giveaways come from many companies you know and love - - Glutino, Enjoy Life Foods, Mary's Gone Crackers, Savory Palate (Carol Fenster), Gluten-Free Makeovers (Beth Hillson), Jules Gluten Free, and many more. 

Now for the Countdown.  The FDA has a goal of finishing the gluten-free standards by the end September.  That means there are 153 days until (fingers crossed) the U.S. finally has clear GF labeling.  The countdown begins on May 1st, the start of National Celiac Awareness Month
Don't forget to check our Facebook  and 1in133.org pages throughout the countdown as we highlight your cupcake entries! 

Calling Labeling Advocates
We Need USDA


The majority of food products in this country (80%) are regulated by the FDA. So, when the labeling rules are finalized, our community will still have to monitor labels on meat and poultry products regulated by the USDA. There has been no word from USDA Secretary Vilsack about the need for GF labeling on foods overseen by his agency. 

Consistent labeling is critical and we don't want to wait years for that to happen. 

We're asking Secretary Vilsack to help us celebrate awareness month with a commitment to adopt the gluten-free labeling requirements, establish by FDA, once they are finalized later this year.

Tell Secretary Vilsack -- It's Celiac Awareness Month. Commit NOW to one gluten-free labeling standard.

Don't forget tweet that #advocate for #GFLabelingUSDA

It's Not Too Late for 
Awareness Month Proclamations
There's still time to get an official proclamation for Celiac Awareness Month. Having the Governor or your state or local mayor make an official proclamation is one way to raise the visibility of celiac disease.  How can you make it happen? In many cases, a citizen needs just to ask.  This is a wonderful project for local support groups or students.  Remember elected officials and their staff want to be helpful and look forward to educating the public, particularly on health issues, whenever possible.

North American Society  
for the 
Study of Celiac Disease 

Leading physicians, scientists and researchers in the fields of celiac disease 
and gluten sensitivity in the United States and Canada now have a professional organization dedicated to the study of celiac disease and gluten sensitivity.  

The North American Society for the Study of Celiac Disease (NASSCD) has as its mission to advance the fields of celiac disease and gluten related disorders by fostering research, and by promoting excellence in clinical care, including diagnosis and treatment of patients with these conditions. 
Membership in the organization is open to medical, scientific and allied health professionals in the fields of celiac disease and gluten sensitivity in the U.S., Canada and Mexico. 
Stefano Guandalini, M.D., founder and medical director of the University of Chicago Celiac Disease Center, was elected as the NASSCD's first president.  Other ACDA Members on the Board of the NASSCD include Joseph A. Murray, M.D., Mayo Clinic in Rochester, MN; and Peter H.R. Green, M.D., Celiac Disease Center at Columbia University. 

Coming Events 
May - National Celiac Awareness Month
         Arlington, VA
12     Making Tracks for Celiacs
         Buffalo, NY
         Syracuse, NY
19     Digestive Disease Week (thru May 22)
         San Diego, CA 
         Minneapolis / St. Paul, MN
         Baltimore, MD
         Tri-County, MI     
        Long Island, NY